c22c logo

Support for Disorders of
Chromosome 22
 
We are here for you.


Home | Contact | Donate | Links | Site Map


                       email bloggerfacebookyoutubetwitteryahoo icon


 CONTACT DISORDERSCONNECTSHOP C22CEVENTSRESEARCHABOUT C22CJOIN C22C


asher

Asher, age 2
22q11 Deletion

julian

Julian, age 18
Emanuel Syndrome














Upcoming Events
of interest to C22C members

22q At the Zoo Worldwide Awareness day, April 22, 2012. Visit http://22q.org/22q_zoo.php for details.

22q at the Zoo Toronto on April 22, 2012, High Park, Toronto - Download Registration form here! - Deadline to register is April 1, 2012 or email rozmin.visram@sickids.ca or 416-813-6389


The Biennial 22q11.2 Deletion Syndrome Meeting, (The International 22q Foundation Inc, The International 22q11/2 Deletion Syndrome Consortium...- July 6-10, 2012 in Orlando Florida. Visit 22qconference.com for news about the event.


19th Annual International Scientific Meeting
of the VCFS Educational Foundation, Inc.

July 19 - July 22, 2012
Hilton Toronto Airport
Toronto, Canada 

Visit www.vcfsef.org for details


2012 Phelan-McDermid Syndrome Foundation

International Family Conference and Scientific Symposium

July 25-28

Visit their website for details.


C22C is hoping to hold a family weekend in Orlando, Florida, in  2012 or 2013. Please check back for details - or sign up to our newsletter or Facebook pages to keep up to date.

With our Annual reunion coming up next year in Orlando, Heather Cortese, who's son Trace is affected with CES is doing a fundraiser for the next 9 months to help raise money for the Reunion. She is contributing 25% of the profits of each bag of Mila to C22.org. 

 

Mila is considered a superfood and is known as The Miracle Seed. It is is gluten–free, trans–fat free, sugar–free, high in fiber and protein, has no taste or smell and can be deliciously combined with many foods! Its supreme biological properties are not diminished by heat in the baking process, therefore making it easy to incorporate into your favorite recipes.

 

Mila™ is a mixture of Salvia hispanica L. seed(Chia) which has been carefully selected to maximize its nutritional value. The mixture is mechanically processed using a proprietary system that optimizes the bioavailability and increases its nutritional value. Nothing is added to the product – it is a pure form of Salvia hispanica L. and is simply the best available today. Please visit her website at www.athletefueledbymila.com or you can contact her directly at athletefueledbymila@yahoo.com for more information.


Past Events

  • C22C Family Gathering, Niagara Falls, July 2009

  • Don't Stop Believin`Benefit, New York, October 2008

  • C22C Family gathering, Niagara Falls, July 2006

  • C22C Massachusetts Family Gala, September 2005

  • World Congress on Chromosome Abnormalities (C22C one of the Host Organizations) June 27 – June 30, 2004.

  • C22C family gathering, Orlando Florida, January 2003

  • C22C Picnic - July 28, 2001 Fuquay-Varina, North Carolina

  • C22C Picnic, July 22, 2000, Barrie, Ontario