Raising the Goddess of Spring: A guide for parents raising children with rare chromosome disorders (2021). Stephanie Rese and others. All Amazon platforms.
The Chromosome 22q11.2 Deletion Syndrome: A multidisciplinary approach to diagnosis and treatment. Donna McDonald-McGinn
Educating Children with Velo-Cardio-Facial Syndrome, 22q11.2 Deletion Syndrome, and DiGeorge Syndrome, Third Edition, 2020 . Donna Cutler-Landsman
Velo-cardio-facial Syndrome: A Model for Understanding Microdeletion Disorders Editor: Kieran Murphy and Peter Scrambler- published June 2005.
MISSING GENETIC PIECES: Strategies for Living with VCFS, Sherry Gomez
Affiliate member, Canadian Organization for Rare Disorders