Extended Hospitalizations
Hi, this is Murney. In our book, I talk about what it is like navigating extended hospital stays – dealing
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Empowerment
Book Recommendations
C22C Book Recommendations Personal Stories – There is nothing more validating that reading someone else’s story and realizing you are
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Advocacy 101 for Parents and Caregivers
Becoming your child’s advocate When you have a child with extra needs, you might not always have everything you need
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Genetic Testing
How Are Chromosome Differences Diagnosed? A doctor may suspect a chromosome difference or disorder in several different circumstances: To test
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Heart Defects
Heart defects are common in children with chromosome 22 disorders. Several of our group member’s children have undergone heart surgery
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Common Medical Questions
Why do Chromosome Differences Cause Medical Problems? We do not know exactly, but in general, having extra copies or missing
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Reproductive Considerations
Hi, this is Stephanie writing. As a balanced reciprocal translocation carrier, I have faced a great deal of frustration in
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