Book Recommendations

C22C Book Recommendations

Personal Stories – There is nothing more validating that reading someone else’s story and realizing you are not alone!

Raising the Goddess of Spring: A guide for parents raising children with rare chromosome disorders. Stephanie Rese, Dr. Melissa Carter and Murney Rinholm.   US Link   Canadian Link 

(Available on all Amazon Platforms)

Raising a Rare Girl   US Link  Canadian Link Heather Lanier

Tao of Davis US Link  Canadian Link Cheryl Wood (Phelan McDermid Syndrome)

A Different Life: Growing Up Learning Disabled and Other Adventures Quinn Bradley

MISSING GENETIC PIECES: Strategies for Living with VCFS Sherry Baker-Gomez 

22q Specific

The Chromosome 22q11.2 Deletion Syndrome A Multidisciplinary Approach to Diagnosis and Treatment Donna McDonald-McGinn, editor

Educating Children with Velocardiofacial Syndrome  Donna Cutler-Landsman

Velo-Cardio-Facial Syndrome, Volume I (Genetic Syndromes and Communication Disorders)   Robert J. Shprintzen, Karen J. Golding-Kushner

Velo-Cardio-Facial Syndrome Volume 2: Treatment of Communication Disorders (Genetic Syndromes and Communication Disorders) Karen J. Golding-Kushner, Robert J. Shprintzen

Velo-cardio-facial Syndrome: A Model for Understanding Microdeletion Disorders  Kieran C. Murphy 

If you have a book that you have connected with and want to share with others, drop it in the comments!