Extended Hospitalizations
Hi, this is Murney. In our book, I talk about what it is like navigating extended hospital stays – dealing
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Book Recommendations
C22C Book Recommendations Personal Stories – There is nothing more validating that reading someone else’s story and realizing you are
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Contribute to C22C
How can I help? Here are some ways people have helped our group in the past: Contribute c22c Why Do
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Raising the Goddess of Spring
Raising the Goddess of Spring: A Guide for Parents Raising Children with Rare Chromosome Disorders In 2021, Stephanie Rese, founder
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Awareness Days
Chromosome 22 Disorder Awareness Days Use Our Hashtags: #c22c #c22central #22qawareness #22qunited February February 28th – Rare Disease Day Follow
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Mental Health Series: Websites, Apps and Books
These are just a few places to get you started. There is so much you can learn on your own.
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Share Your Stories
Become a C22C Contributor! We are always looking for stories to feature from C22C Community members. We have a blog
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Advocacy 101 for Parents and Caregivers
Becoming your child’s advocate When you have a child with extra needs, you might not always have everything you need
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