C22C
Chromosome 22 Central
Compassion, Connection, Community. Stronger, together. Since 1996.
A 501(c)(3) Corporation (USA)
What is C22C?
C22C is a global collection of parents and people affected by chromosome 22 disorders who connect, advocate and grow, together.
Our website is a hub for people to find immediate connections with others through our various social media platforms, and to find basic information and links to other resources.
We also welcome the involvement of professionals working with people with chromosome 22 disorders.
Started in 1996 with just 17 families of children with what is now known as Emanuel syndrome, Chromosome 22 Central has grown over the past 25+ years into a community for anyone needing support or information about disorders of chromosome 22.
Chromosome 22 Central supports over 5,000 members through our various social media platforms, in over 45 countries.
The C22C Difference
- We don’t focus on one specific disorder.
- We support people and bring awareness internationally online through our website and social media platforms.
- Our “members” represent many different chromosome 22 disorders.
- We consider you a member if you join one of our social media groups and interact with us online.
- We don’t collect personal data or keep a database.
- We are open to everyone; people living with C22 disorders, families, professionals working with others, and researchers trying to expand their knowledge.
Our families come together to find connections around the world.
What else is C22C about?
- We raise funds to support activities that are important to us. We don’t charge membership fees, so we count on the generosity of members who can help us fundraise.
- We maintain a website that allows people to find others.
- We help researchers who want to learn more about chromosome 22 disorders by posting their studies.
- We sometimes help fund conferences for other organizations that would benefit our members.
- We sometimes cover the costs for food and meeting spaces for C22C families who connect online and want to get together in person for small group meetings.
- We have covered childcare costs for conferences of other organizations.
- We have mailed out over a thousand parent guides on Emanuel syndrome, for free.
- We run awareness campaigns on social media so people learn about chromosome 22 disorders.
- We have held several past family conferences and plan for more in the future.
- We hold online events and webinars.
- By registering with other larger umbrella organizations, we ensure our group is easy to find.
- We connect with other groups like ours who do extraordinary things and share their activities and events.
- We try to fill the gaps where there isn’t enough support or information for families. We want feedback from our members to tell us what they need.
- Our existence allows families to feel part of a community so they don’t feel alone on this journey.
- We work hard to spread awareness of chromosome 22 disorders.
- We offer comfort in support of each other, validation, strength and community.
C22C Commitment
As parents supporting other parents and people affected by chromosome 22 disorders, our commitment is to try to ensure people feel connected, have the information they need, and offer them a place to feel a sense of community.
Our mission is to spread awareness and offer support and information on all chromosome disorders.
C22C Brochure - Click to Download or Share
